Spinal Muscular Atrophy (SMA) is a very disabling neurodegenerative rare disease affecting to daily basic activities such as move, eat or get dressed.
It only affects to 1.500 people in Spain, making this disease invisible for the society. But beyond those who are diagnosed with it, there are many other people hidden behind someone with SMA: their caregivers. They suffer from SMA as well, but just from a very different perspective. Not only the patients are invisible for the society. Caregivers are too.